Feeling Twisted . . . All the Time?

I’m sure there were times on the playground showing off unnatural and contorted body movements could have been cool, after all, how many people can bend their fingers and arms in unimaginable ways?  For a youngster, the ability to move about in a magical way would make Houdini jealous, but the reality is not an illusion, it is not a gift – more often, a curse.  You see, this rare hypermobility syndrome afflicts at least 1 in 5,000 individuals worldwide with confirmed cases of Ehlers-Danlos Syndrome (EDS) affecting 1 in 400,000 people – though there are more, many more.  You see, many are underdiagnosed or not diagnosed at all, problems stemming with lack of medical research, available practitioners, diagnostic and treatments, and insurance coverage, leaving many frustrated, feeling hopeless, scared, and in pain.

Twisted and contorting body parts is just the surface, EDS spans the gamut of joint instability, dislocations, weakness to the structural system – and, more dangerously, weakness of tissues that can lead to hernias and organ prolapse, gum and eye disease, cardiac and aortic root disorders and life-threatening affects to the organs.

Imagine going about your daily doings without the ability to fully utilize your fingers. Not being able to type, text, or swipe.

Limited and painful use of the fingers for all tasks.  Imagine all that we take for granted, and to think, for some, a simple finger splint can be game-changer for those daily challenges.

Part of our multi-pronged business pillar is to "Do Good" and to celebrate the fall season, Girl in a Camera Productions is offering a heavily discounted mini-photo shoot for a 30-minute outdoor session for $75 or 45-minutes for $100.  All proceeds will be used to purchase finger splints for a young woman in Oregon who is eager to get back to creating art and living the best life possible.